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💜 Have you ever heard of #SíndromeDeMenkes or #SíndromeDeMarfan ? 💚 Surely not. That is why we invite you to learn more about these #EnfermedadesRaras that we make visible this week together ... Show more   www.cdleganes.com/noticias/conoce-las-enfermedadesraras-que-visibilizamos-esta-semana
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👏🏻👏🏻 Yesterday we experienced a very special kick-off in Butarque. 💜 Emma, ​​Vera and Lucía, three people affected by Butterfly Skin disease ... Show more   www.cdleganes.com/noticias/un-saque-de-honor-muy-emotivo
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💜 Have you ever heard of Huntington's Disease or Smith-Magenis Syndrome? 💚 These are two of the #EnfermedadesRaras that we make visible this week together with the Spanish ... Show more   www.cdleganes.com/noticias/conoce-las-enfermedades-raras-que-visibilizamos-esta-semana-13-noviembre
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💜 ASMD and Niemann-Pick disease affects one in every 250,000 people in the world. 🧑🏻‍⚕️ Learn a little more about this and others #EnfermedadesRaras here Spanish ... Show more   www.cdleganes.com/noticias/conoce-las-enfermedades-raras-que-visibilizamos-esta-semana
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Veteranos Futbol C.D. Leganés : Luis Bejarano, player and captain of the Veterans, collecting the cup champion trophy of the Spanish Federation Association of Veteran Footballers ... Show more
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💜 Do you know what Fragile X Syndrome is? There is no cure, but getting early treatment can be helpful. 💚 Learn more about this rare disease here 👉 ... Show more   www.cdleganes.com/noticias/conoce-un-poco-mas-sobre-el-sindrome-x-fragil
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💜💚 Do you know what Trigeminal Neuralgia is? Learn a little more about this rare disease that we made visible this week. Spanish Federation of Rare ... Show more   www.cdleganes.com/noticias/nueva-semana-para-visibilizar-enfermedades-raras
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💜💚 Have you ever heard of Gaucher Disease? And about Girdle Muscular Dystrophy? These are some of the #EnfermedadesRaras that we make visible this week ... Show more   www.cdleganes.com/noticias/nueva-semana-nuevas-enfermedades-raras-a-visibilizar
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💜 Do you know that Pitt-Hopkins Syndrome affects only fifty people worldwide? It is one of the #EnfermedadesRaras that we make visible this week ... Show more   www.cdleganes.com/noticias/enfermedades-raras-18-25-septiembre
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💜💚 Usher Syndrome, Familial Mediterranean Fever, Kleefstra Syndrome. 👉🏻 Do you know them? They are the #EnfermedadesRaras that we make visible this week by the Spanish ... Show more   www.cdleganes.com/noticias/enfermedades-raras-11-17-septiembre
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©️😍 This Sunday we will premiere our most special captain's bracelet. 🥒 Formed by the colors of the World Rare Disease Day logo ... Show more
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Cebuanos celebrate the 125th Philippine Independence Day with a civic military parade from Fuente Osmeña Circle to Plaza Independencia on Monday morning ... Show more   #ArawNgKalayaan   rappler.com/nation
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💜💚💙 Our third kit, in collaboration with JOMA and the Spanish Federation for Rare Diseases, is made up of the colors associated with these diseases ... Show more   #EnfermedadesRaras   #PersonasÚnicas