autosomal recessive disease characterized by the buildup of mucus
Cystic fibrosis: 'Kaftrio drug changed our lives,' say family: Jesse, five, feels less pain thanks to his new medication, his mum says.
bbc.com/news/uk-england-essex-68874801
Tests show ‘groundbreaking’ cystic fibrosis drug safe and effective in newborns: Ivacaftor - sold under trade name Kalydeko - previously available to babies ...
irishtimes.com/health/2024/04/11/tests-show-groundbreaking-cystic-fibrosis-drug-safe-and-effective-in-newborns/
U.S. Scrutiny of Chinese Company Could Disrupt U.S. Supply Chain for Key Drugs: Lawmakers raising national security concerns and seeking to disconnect a major ...
nytimes.com/2024/04/15/health/wuxi-us-drugs-congress.html
Ditzinger CV on April 28th - The North Sea air allows muko sufferer Emma to breathe deeply
stuttgarter-nachrichten.de/inhalt.ditzinger-lebenslauf-am-28-april-die-nordseeluft-laesst-die-muko-kranke-emma-durchatmen.e4f54a1f-fa6f-4626-9c7d-c3a3d401be0b.html
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Because on the Rhine - Maihock with jersey auction: A signed Liverpool FC jersey is being auctioned off at “Galileos”.
verlagshaus-jaumann.de/inhalt.weil-am-rhein-maihock-mit-trikotversteigerung.1e5a7851-b87b-4724-904b-a0e9380fbc75.html
Cystic fibrosis drug a 'huge moment' for treatment of newborn babies : The study included the first baby in the world with CF to be diagnosed from ...
irishexaminer.com/news/arid-41372074.html
‘We are having lives we never thought we could’: Women with cystic fibrosis on their parenthood journeys
irishtimes.com/health/your-wellness/2024/04/11/we-are-having-lives-we-never-thought-we-could-women-with-cystic-fibrosis-on-their-parenthood-journeys/
Chester: Nearly £900 raised for dad needing liver transplant: Ben Belton has cystic fibrosis, which has severely affected his liver
chesterstandard.co.uk/news/24244295.nearly-900-raised-wrexham-dad-needing-liver-transplant/
I can run marathon thanks to drugs: A YOUNG woman with cystic fibrosis is to run the London Marathon to help fund reseach. Nell Summerley, 21 ...
henleystandard.co.uk/news/home/188405/i-can-run-marathon-thanks-to-drugs.html
Culture in the Wittenberg district: Paul Potts sings in Coswig: Coswig/mz. - Something like this definitely doesn't happen every day in Coswig ...
mz.de/lokal/wittenberg/paul-potts-singt-in-coswig-3819894
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Insight: In Gaza, starving children fill hospital wards as famine looms: Reuters saw 10 badly malnourished children during a visit last week to the al-Awda ...
reut.rs/3THWAUG
Death is always in sight: Elena Ostermeier from Böhmfeld suffers from cystic fibrosis
donaukurier.de/lokales/landkreis-eichstaett/der-tod-ist-fuer-elena-ostermeier-die-an-der-unheilbaren-krankheit-mukoviszidose-leidet-immer-in-sichtweite-15735366
Vertex's triple combination CF treatment meets main late-stage trial goals: Vertex Pharmaceuticals' experimental triple combination cystic fibrosis (CF) ...
reut.rs/3SLUaUq
Leeds family 'in turmoil' as they await decision on baby's life-changing medication ⤵www.yorkshireeveningpost.co.uk/health/leeds-family-living-in-turmoil-as-they-await-decision-on-daughters-life-changing-cystic-fibrosis-medication-4563745
The Mothers Who Aren't Waiting to Give Their Children Cystic-Fibrosis Drugs: A new treatment can change a person’s life, but is not officially approved for ...
theatlantic.com/health/archive/2024/03/cystic-fibrosis-treatment-babies-trikafta/677799/
A medical breakthrough for cystic fibrosis has given many patients a chance to live decades longer than expected. What do they do now? Sarah Zhang reports: ... Show more www.theatlantic.com/magazine/archive/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471/
Silke and Andreas both live with the metabolic disease cystic fibrosis. That's exactly how they met. 6 years after the first meeting, something clicked ... Show more
The Cystic Fibrosis Breakthrough That Changed Everything: Cystic fibrosis once guaranteed an early death—but a medical breakthrough has given many patients a ...
theatlantic.com/magazine/archive/2024/04/cystic-fibrosis-trikafta-breakthrough-treatment/677471/
Play a wind instrument to help your unhealthy lungs: The effort needed to play such instruments helps exercise the lungs in those with respiratory disease.
thestar.com.my/lifestyle/health/2024/03/05/play-a-wind-instrument-to-help-your-unhealthy-lungs
Lipid nanoparticles research closing in on genetic treatments for hereditary lung disease, vision loss
phys.org/news/2024-03-lipid-nanoparticles-genetic-treatments-hereditary.html
Cystic fibrosis breakthrough points to zinc as infection buster: Zinc has been found to be important in reducing lung infections in people with cystic fibrosis ...
newatlas.com/medical/zinc-lung-macrophages-anti-bacterial-cystic-fibrosis/
Music teacher hails 'magical' cystic fibrosis drug that has changed his life: Wayne McAloon's cystic fibrosis means he's 'still effectively on ...
chroniclelive.co.uk/news/north-east-news/music-teacher-hails-magical-cystic-28643232
Magnetic System May Improve Kidney Stone Removal: Data suggested that the use of magnetic hydrogel could be integrated into laser treatments for renal stones ...
medscape.com/viewarticle/magnetic-system-may-improve-kidney-stone-removal-2024a10001qi
Haleon to Recall Batches Of Some Adult Cough Syrups Due to Contamination: Haleon is recalling some lots of its adult cough syrup Robitussin because of microbial ...
medscape.com/s/viewarticle/haleon-recall-batches-some-adult-cough-syrups-due-2024a10001uz
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DWP could give you £8k a year if you suffer with asthma: If any of these conditions affect your daily life you may be entitled to claim
liverpoolecho.co.uk/news/uk-world-news/dwp-could-give-you-8k-28536466
You could get £9k a year from DWP if you suffer with common illnesses: Many people with chronic health problems already claim the support, which can total up to ...
walesonline.co.uk/news/cost-of-living/dwp-could-give-you-9000-28512506
Bremerhaven: 13-year-old Amina received a donor lung: Due to a complicated cystic fibrosis disease, 13-year-old Amina from Bremerhaven was urgently in need of a ...
weser-kurier.de/bremen/bremerhaven-13-jaehrige-amina-hat-eine-spenderlunge-bekommen-doc7ttovhn15zpr4lnrcfm
I have cystic fibrosis but experts say drugs for others like me are too expensive. What price a life?
theguardian.com/commentisfree/2023/dec/13/nhs-cost-lives-cystic-fibrosis-drugs-cut
Leeds family praying for 'miracle drug' for baby daughter's rare condition - as NHS decision looms tinyurl.com/m6pvujbn
Kaftrio: Fears baby boy may not benefit from cystic fibrosis drug: The National Institute for Health and Care Excellence says the drug is too expensive for new ...
bbc.com/news/articles/c032qz4r2ngo
Not isolated cases: These are the 3 most common hereditary diseases: Thanks to advanced medicine, hereditary diseases can now sometimes be detected before birth ...
infranken.de/ratgeber/gesundheit/keine-einzelfaelle-das-sind-die-3-haeufigsten-erbkrankheiten-art-5810958
Joe O’Donnell, entrepreneur and transformative philanthropist for cystic fibrosis, dies at 79
bostonglobe.com/2024/01/07/metro/joe-odonnell-entrepreneur-transformative-philanthropist-cystic-fibrosis-dies-79/
Alberta further expands access of revolutionary cystic fibrosis drug Trikafta to young kids | Globalnews.ca
trib.al/CcxeX8z
Signs and Symptoms of Cystic Fibrosis : Cystic fibrosis is a genetic disorder that affects the lungs and digestive system, causing symptoms such as breathing ...
health.com/cystic-fibrosis-symptoms-8406668
'Zero effort' - Irish hospital food criticised by cystic fibrosis campaigner Jillian McNulty
independent.ie/videos/zero-effort-irish-hospital-food-criticised-by-cystic-fibrosis-campaigner-jillian-mcnulty/a364645082.html
'Miracle' mum Tina Lee becomes first Australian cystic fibrosis patient to receive rheumatoid arthritis drug in experimental treatment
abc.net.au/news/2023-12-05/qld-miracle-mum-cystic-fibrosis-baby-tina-lee/103149084
Gary Klausner of Plainview celebrates personal milestone over cystic fibrosis with message of hope
newsday.com/long-island/nassau/cystic-fibrosis-lung-transplant-klausner-acjipvzo
Cystic fibrosis drug: 'Is my child's life not worth £100k: Suzanne Doherty’s 15-month-old boy Leo has cystic fibrosis and cannot access the drug Kaftrio
bbc.com/news/articles/c90x90x9vv1o
Cystic fibrosis patients could see 'miracle drug' cut from NHS due to 'unjustifiable' costs
itv.com/news/2023-11-23/cystic-fibrosis-miracle-drug-may-be-cut-from-nhs-due-to-costs
Organ donation urgently needed: Amina's search for a donor lung: 13-year-old Amina from Bremerhaven suffers from cystic fibrosis. A donor lung is their only hope ...
weser-kurier.de/ratgeber/gesundheit/organspende-dringend-benoetigt-aminas-suche-nach-einer-spenderlunge-doc7t8ow7dexuo13pj0odpq
'I'll be planning my baby's funeral': Norwich mum's fears if cystic fibrosis drug is withdrawn
itv.com/news/anglia/2023-11-15/ill-be-planning-my-babys-funeral-mums-fears-if-drug-is-withdrawn
Cystic fibrosis 'miracle drug' Kaftrio best Christmas gift - family: Jesses, 4, from Essex, who has cystic fibrosis, will begin taking Kaftrio drug after its ...
bbc.com/news/uk-england-essex-67462092
Catherine Deveney: Pharmaceutical companies have become a shameful medical mafia: It is incomprehensible that nations allow drugs companies to blackmail ...
pressandjournal.co.uk/fp/opinion/columnists/6275977/cystic-fibrosis-pharmaceutical-companies-catherine-deveney-opinion/
I was outraged to discover £100,000 was the price of my baby's life: I cannot tell you how devastated – and angry – we are.
metro.co.uk/2023/11/09/i-was-outraged-to-discover-100000-was-the-price-of-my-babys-life-19797860/
Meet Aaron Aby, a former footballer turned mixed martial arts fighter. Born with cystic fibrosis, in 2017 he was told to prepare for the worst after being ... Show more bbc.in/3u02SVi
Belgian cystic fibrosis research awarded €1.5 million in funding: Cystic fibrosis, Belgium's rarest genetic condition, has roughly 1,400 known patients; ...
brusselstimes.com/belgium/806016/belgian-cystic-fibrosis-research-awarded-e1-5-million-in-funding
The heartbroken mum of a baby girl with cystic fibrosis says her daughter might die because the medication she needs isn't classed as "value for ... Show more tinyurl.com/2vy2tdjt
Leeds mum devastated that daughter's 'miracle drug' could be denied to other familiestinyurl.com/3mtwmpjy
Girl, 4, living with cystic fibrosis given green light for 'miracle drug': A mother who feared her daughter would not get potentially life-saving drugs has been ...
expressandstar.com/news/local-hubs/staffordshire/burntwood/2023/11/20/burntwood-youngster-lainey-given-the-green-light-for-miracle-drug/
‘Lifeline’ cystic fibrosis drug is approved for more children but Wakefield mum says her son’s future is still uncertain
wakefieldexpress.co.uk/health/lifeline-cystic-fibrosis-drug-is-approved-for-more-children-but-wakefield-mum-says-her-sons-future-is-still-uncertain-4412848
Essex woman given 2 weeks to live 'felt like she was being suffocated every day': Georgie Cooper said her donor has given her the ‘gift of life’ ...
essexlive.news/news/essex-news/essex-cystic-fibrosis-fighter-given-8908505
‘Miracle’ cystic fibrosis drug that helped Wakefield teenager achieve Barnsley FC scholarship could out of reach for younger children
wakefieldexpress.co.uk/news/people/miracle-cystic-fibrosis-drug-that-helped-wakefield-teenager-achieve-barnsley-fc-scholarship-could-out-of-reach-for-younger-children-4406074
Mum 'cried for hours' after learning son's life could be cut short: 'It's so unfair and it's beyond me that anyone could put a price on a ...
cornwalllive.com/news/cornwall-news/camborne-mum-cried-hours-after-8905654
'My daughter was weeks away from starting life-saving treatment - now she may never get the chance' 😔
Full story: bit.ly/473c361
'I was excited for my baby's future. One terrifying Instagram post changed that': Jacqueline Buckland has spoken of her heartbreak
manchestereveningnews.co.uk/news/greater-manchester-news/i-excited-babys-future-one-28062301
Treatment to help Wakefield baby with cystic fibrosis live a longer and ‘normal’ life could be withdrawn
wakefieldexpress.co.uk/news/people/treatment-to-help-wakefield-baby-with-cystic-fibrosis-live-a-longer-and-normal-life-could-be-withdrawn-4402624
England's young cystic fibrosis patients face new treatment worry: Young English sufferers of cystic fibrosis (CF) face new uncertainty after regulators ...
reuters.com/business/healthcare-pharmaceuticals/englands-young-cystic-fibrosis-patients-face-new-treatment-worry-2023-11-06/
Tech Leader Slouches, But Its Late-Stage Pipeline Shines: VRTX stock investors are closely watching Vertex's efforts in pain treatment ...
investors.com/news/technology/vrtx-stock-vertex-earnings-q3-2023/
Vertex Pharma misses sales estimates on weak demand for older CF treatments: Vertex Pharmaceuticals (VRTX.O) missed Wall Street estimates for third-quarter sales ...
reuters.com/business/healthcare-pharmaceuticals/vertex-pharma-misses-sales-estimates-weak-demand-older-cf-treatments-2023-11-06/
‘Lifeline’ cystic fibrosis drug is approved for more children but Wakefield mum says her son’s future is still uncertain
wakefieldexpress.co.uk/health/lifeline-cystic-fibrosis-drug-is-approved-for-more-children-but-wakefield-mum-says-her-sons-future-is-still-uncertain-4412848
‘Miracle’ cystic fibrosis drug that helped Wakefield teenager achieve Barnsley FC scholarship could out of reach for younger children
wakefieldexpress.co.uk/news/people/miracle-cystic-fibrosis-drug-that-helped-wakefield-teenager-achieve-barnsley-fc-scholarship-could-out-of-reach-for-younger-children-4406074
‘I Was Told I Wouldn’t See My Thirties And That I Couldn’t Have Kids. Instead, I’m 33 And I Have A 10 Month Old’
graziadaily.co.uk/life/health-fitness/cystic-fibrosis-parenting-kaftrio-success-story/
SHAREHOLDER deposit value Vertex: Next approval, new record high: The rally at Vertex continues.
deraktionaer.de/artikel/pharma-biotech/aktionaer-depotwert-vertex-naechste-zulassung-neues-rekordhoch-20341378.html
This is Isobel and she missed a lot of school. Living with cystic fibrosis, the 22-year-old says she'd regularly end up in hospital on a drip instead of in ... Show more tinyurl.com/5drera75
Life-Changing Cystic Fibrosis Treatment Wins $3-Million Breakthrough Prize: Scientific American is the essential guide to the most awe-inspiring advances in ...
nature.com/articles/d41586-023-02890-1
This court case will literally determine who gets to breathe: A pivotal case for access to affordable medicines in South Africa is set to determine whether ...
dailymaverick.co.za/article/2023-10-03-cystic-fibrosis-court-case-will-determine-who-gets-to-breathe/
Setback in the case Dhespina: Repatriation from Albania is stopped at the plane: The 16-year-old suffering from cystic fibrosis and her family were supposed to ...
freiepresse.de/mittelsachsen/mittweida/rueckschlag-im-fall-dhespina-rueckholung-aus-albanien-wird-am-flieger-gestoppt-artikel13073455
Saxony must bring deported Dhespina and her family back from Albania: In mid-September, a seriously ill teenager from Saxony was deported to Albania ...
saechsische.de/sachsen/sachsen-muss-abgeschobene-familie-aus-albanien-zurueckholen-5914593.html
16-year-old Dhespina is deported from Mittweida despite cystic fibrosis: A 16-year-old was deported despite suffering from an incurable illness ...
freiepresse.de/mittelsachsen/mittweida/16-jaehrige-dhespina-wird-trotz-mukoviszidose-aus-mittweida-abgeschoben-artikel13064876
DeepMind's new AI tool can predict genetic diseases: Google DeepMind has unveiled its novel AI tool that can predict whether DNA mutations are likely to cause ...
thenextweb.com/news/deepminds-ai-tool-predicts-genetic-diseases
The cystic fibrosis drug Trikafta helps roughly 90 percent of people who have the deadly genetic disease. What does life look like for those left in the 10 ... Show more trib.al/jLKWfLe
Jimmy Buffet remembered in Lake Worth Beach ‘Paddle Out’ | PHOTOS: Fans, friends and family gather to remember Jimmy Buffett in Lake Worth Beach during ...
sun-sentinel.com/2023/09/24/jimmy-buffet-remembered-on-beach-photos/
A breakthrough way to train neuromorphic chips: Using a biosensor to detect cystic fibrosis as the test case, TU/e researchers have devised an innovative way to ...
techxplore.com/news/2023-09-breakthrough-neuromorphic-chips.html
Canadian co-discoverer of drugs for cystic fibrosis among winners of 2024 Breakthrough Prize
theglobeandmail.com/canada/article-canadian-co-discoverer-of-drugs-for-cystic-fibrosis-among-winners-of/
Paid articlePaid Vertex scientists share $3 million prize for developing the company’s cystic fibrosis drugs
bostonglobe.com/2023/09/14/business/vertex-scientists-share-3-million-prize-developing-companys-cystic-fibrosis-drugs/
Cystic fibrosis: What is it and what does the future hold with improving treatments?
irishtimes.com/health/your-wellness/2023/09/12/cystic-fibrosis-what-is-it-who-gets-it-what-are-the-treatments-and-what-does-the-future-hold/
Young mum spending last months 'creating memories' with son: Jet Budge is determined to make a lifetime of memories with her son in the time she has left
cornwalllive.com/news/cornwall-news/mum-29-spending-last-months-8661568
Meissen: Nossenerin organizes the Guardian Angel Run in Siebenlehn: Proceeds from the September 7 run will go towards research into the incurable disease cystic ...
saechsische.de/meissen/schutzengellauf-5903460-plus.html
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